People with chronic fatigue syndrome, also known as myalgic encephalomyelitis, appear to have eight genetic signals that differ from those without the condition
Oh god, yeah.
One of the worst things ever was being ultimately convinced by my friends & family that I was ‘just a bit lazy and just a bit crazy’ and all that… convinced to redouble my efforts to ‘break on through to the other side.’ Which I sincerely tried, with every bit of my being.
Holy hell, and I would sometimes subsequently slip in to *severe*-mode for a while, which was absolute terrifying. Like, I could barely even make my way to the bathroom to attend to my duties, and all that.
So I learned that, sadly, I could never trust other people to actually comprehend what I was going through. That I was all alone, completely, and somehow I would have to work things out and survive, with egg on my face over-and-over again.
I didn’t have as much external pressure as you did, but I fell into a similar trap. I would push myself, because that’s the person I always was, and then I would crash and get so much worse. I remember a time when I couldn’t move basically at all from how badly I had overexerted myself, and I just asked my partner to stick a saltine on the pillow in front of my face so I could try to get to it at some point (saltines will melt in your mouth on their own even without chewing).
Oh god, yeah.
One of the worst things ever was being ultimately convinced by my friends & family that I was ‘just a bit lazy and just a bit crazy’ and all that… convinced to redouble my efforts to ‘break on through to the other side.’ Which I sincerely tried, with every bit of my being.
Holy hell, and I would sometimes subsequently slip in to *severe*-mode for a while, which was absolute terrifying. Like, I could barely even make my way to the bathroom to attend to my duties, and all that.
So I learned that, sadly, I could never trust other people to actually comprehend what I was going through. That I was all alone, completely, and somehow I would have to work things out and survive, with egg on my face over-and-over again.
@Björn Tantau@swg-empire.de
I’m so sorry you were pressured like that.
I didn’t have as much external pressure as you did, but I fell into a similar trap. I would push myself, because that’s the person I always was, and then I would crash and get so much worse. I remember a time when I couldn’t move basically at all from how badly I had overexerted myself, and I just asked my partner to stick a saltine on the pillow in front of my face so I could try to get to it at some point (saltines will melt in your mouth on their own even without chewing).
Wow… I don’t know what to say about this @#*!$ disease, but at least we have each other to tell our tales, no?